Thursday, October 30, 2008
Do I beat my kid?
After school, we packed into the car to head to another doctores appointment. This time it was actually just my "girlie" exam. I really do look forward to these. No, it is not just a fondness for the stirrups, I really do love my doctor! He is terrific! So, I look forward to chatting with him. Today, was a day to fill him in on all of the new things going on in our life. Dr. Nadeau said that he has several patients that have MS and many of them have been pregnant or are currently pregnant and there are not any complications. So if that is in our cards, there are no problems from his end. He also mirrored what my neurologist said, that there is no reason that you cannot conduct your life the same way that I have been, I will not die and that medicine has so many options that are coming out all the time. It is so nice to have all of the people that are educated in this stuff giving me positive feedback.
We couldn't pass up the beautiful weather after naps. I tested the child labor laws and put the girls to work. We raked up a pile of leaves to play in. Lots of laughs.
After dinner, we found that the pumpkin fairy had visited our backyard. The girls went hunting and found their perfect canvasses for carving. Oh, the joy of kids! Such a reward.
Wednesday, October 29, 2008
10-29-08 Wed.
Tuesday, October 28, 2008
TODAY..
What a difference a day . . .
My headache is gone and now I move around like I am 80 years old woman or like I have a giant stick up my ass. I have a fear that if I do too much with my back, I will move the man-made blood clot off of the magical spot.
Spent the morning on the couch. Jay, again being the wonderfully dutiful father, got the girlies dressed and Emma off to school this morning. I took in a little bit of "Ellen" - that Chris Rock is darn funny - and waited for Jay and Madz to get back home.
For a while, I watched Jay flutter around the house trying to pick up toys and organize things. I wonder if he is thinking about how amazing I am for doing this everyday?? humm. I sat on the couch watching Madeline play and interacting as much as possible. All that was needed would be a Pall Mall cigarette, some bon-bons and Jerry Springer - mother of the year!
At almost exactly 1pm - not less then 24 hours after my procedure - the dictator let me off the couch to move around. My head felt great, the back, not so much. With that news, Jay got dressed and went to work. It doesn't take much for the Viera Empire to collapse, therefore the master has to be off to make some shillings.
My babes off to dreamland after much negotiation with the almost 3 1/2 year old - whoever said the twos were terrible, never experienced a three year old. Those of you with kids out there will most certainly agree - I was able to carefully get somethings done.
Wow, I feel like almost a normal human being. Having realized that I haven't been out of my home since the day of tests on Friday, I can't wait for tomorrow. A playdate with a couple of my favorite gal pals!!
And to top off a nice day, Jay grilled a fantastic pork tenderloin. Yum.
Monday, October 27, 2008
Worthless day #2
I watched as Jay readied himself for work and left, knowing that I would not be bothering anyone today with my head issues and I would be off to class with Madeline and Em. Us girls played and read books, all the while thinking that I just had to make it to nap time so that I could rest.
I put a precautionary call into my neurologists' nurse, Peggy, just to make sure that there was not something debilitating that could happen to me with these headaches. She immediatly said that she was calling in a "blood patch" for me. Ugh. Don't people know that I have plans for a busy day. I have kids to raise, a house to clean, etc. - Eh, who am I kidding, just kids to raise - The pleasant thoughts of getting rid of these headaches overtook my stubborness and I called Jay. He came home, we swung the girls by my good friend Mary's house - she is just great! Jay and I are so lucky to have our families here for us and some really great friends willing to help out on a whim - and we were off to Methodist again.
The only other experience I have had in hospitals were when I had the girls and that was great. Perfect days in every way! I am starting to find that it is not all that exciting all the time in the hospitals.
I was prepped by a great anisthesiologist (sp?) and his nurse. The procedure did not take that long, but they made me sit around for quite a while. By the sounds of it, there were several other people in the surgery area who would have traded places with me in a minute.
Back home, Jay the wonder husband - I always knew he was wonderful, but at times when you need him to step up in other areas, he really shines - set me up in bed and there I spent the remainder of the day. Watching all the fun go on around me.
As I sit here, I can breifly tell that my headaches have lessened, but my back hurts like something else! Whatever. I am just very lucky. Things are good.
For anyone that may be reading this and finding out about my MS diagnosis, I just ask that you don't feel sorry for me or think the worst. As my family and I find out more and more, it is a disease that comes in many forms and for most, you feel just fine most of the time with only periodic episodes. You can learn more about MS by visiting the link above. Lots and lots of people have it, probably people that you run into everyday. You just don't know it.
Now that I am done with these pain in the ass tests and will be resting until about mid-day tomorrow (Jay is very strict with making sure that I adhere to the 24 hour wait), I will be back to 100%. Hoping to not have to take Jay away from work again for quite sometime - he really does love his job - and get the girls back on their schedule. . . Until tomorrow.
ANOTHER NORMAL DAY?
Sunday, October 26, 2008
comments....
J
My totally worthless day
Friday was a day full of tests ending with a spinal puncture (nice name huh?). The test itself went fine with very little discomfort. Jay was so good about making sure that I did not much of anything else the rest of the day. Emma was secured safely with Grandma Kim and Grandpa Don, and Madeline was brought home just in time for me to give kisses and put her to bed.
Saturday was beautiful. I had rested the mandatory 12 hours after a spinal puncture, so I was up and at-em on Saturday. Got the garden cleaned up and planted some flowers. Having only a minor headaches throughtout the day.
Sundays weather had much left to be desired. The girls and I got up at the usual time and did a little playing and read a ton of books. By that time, I had a terrible headache. Jay awoke from his beauty sleep with the typical weekend morning look of "You guys are already up playing and making so much noise?" - I am not sure that he remembers how lucky he is that I have never once made him wake up with the girls. Knowing it was Sunday morning and we were to get dressed to visit church, I got the girlies dressed. I dragged myself to the shower with a headache that was increasingly getting worse.
We made it through about 10 minutes at church before I threw in the towel. I was bummed, but there is no way that I would have been able to make it. Jay drove me home and I fell into bed with my shoes and everything still on.
I interrupted Dr. Freking - my neurologist (I hate the thought of having MY neurologist) - during what was probably a nice Sunday of relaxation wondering what he wanted me to do with my headace. He said to just lay around and do nothing. Period. Yeah, right.
Thankfully Jay has been great. He let me do exactly that. He took the girls to McD's and palyed with them, got dinner ready and cleaned up. All with me getting up minimally. As I sit here typing, I feel the headache coming back again. Ugh. I hope that it is going by tomorrow or taking care of my two prescious babes will be kind of difficult. Oh well, we will make it through.
And to make matters worse, it was my dads birthday today. And I just now remembered that. Nice daughter huh? My brain just wasn't thinking about much today. I felt badly. But, at least I did call!
HI
The lowdown...
That's the looooonnnnggg and the short of whats happening here.
This blog is not going to be all doom and gloom, but I thought some people would like to have the update.
The girlies are doing great, we have already had two Halloween parties. They are looking forward to Friday.
Bye for now.
J
Welcome to our life
Jay